All information provided in this site, as well as the sites for which you find links provided herein, is NOT intended to take the place of the care of a qualified fuchs' experienced eye professional.  DO NOT do ANY of the "tips" or suggestions in these sites without the express permission and supervision of your professional eye dr.  This group, and these sites, are not responsible for any problems as a result of the information provided.

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Now that you know you have this Disease

Now that you know you have the disease called Fuchs' Corneal Dystrophy what should you do about it?   The first thing you need to do is realize that you have a DISEASE.  It isn't going to go away by itself, and ignoring it isn't going to help.   

Now that you've accepted the reality of having a DISEASE I'd like to STRONGLY recommend that you find a fuchs'-experienced cornea specialist to see on a regular basis.  Why not just stay with your regular eye dr?  Just like if you had a disease in any other part of your body, you need to be seeing a specialist in that disease to monitor the progression of it.  Fuchs' Corneal Dystrophy is NOT a common disease.  Only about 1% of the population has it, and many of them have never (or never will be) diagnosed!  For that reason alone, your regular eye dr is not sufficiently trained or experienced to be able to handle your situation.  For information on kinds of eye doctors please check in the "Information" section under the heading "D" ("doctor).  Also in that section is a list of questions you can print out and take along to ask your dr to find out how experienced they really are with fuchs' dystrophy and exactly where you are in the progression of it!

It's important also to note that you do not have to lose your independence or your sight... but it's UP TO YOU to take a pro-active approach to this disease.  In other words, it's important that you not only learn and understand what is happening inside your eyes when you have this disease, but ALSO that you be very aware of what is changing in your vision.  You need to keep very alert as to what you can and can't see well.... and be aware of changes.  It's all to easy to make automatic, unconscious adjustments without really being aware of them.  If you don't do that, the changes will "sneak up" on you until suddenly you can't see much at all!  It's up to YOU and YOU ALONE to be aware of the changes, and alert your dr to them.  Remember.... your dr isn't seeing through your eyes- only YOU are, and only YOU can tell them what you are and aren't seeing clearly.

Karen P, Wisconsin

co-owner FuchsSupport

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